Friday, November 9, 2012


Congratulations to Rachel and Jason Rothschild and so many other tri-state area Rett families for spearheading the Rett Syndrome Research Trust NYC event last night.  Despite the last few challenging weeks of hurricanes, snowstorms and power loss in the region, hundreds of people attended.  It was held at a magnificent venue, the Broad Street Ballroom in the heart of Manhattan’s Wall Street district.  Our friend Stefanie Gutierrez, mother of four-year-old Anna who passed away in September from complications due to Rett syndrome, gave a brave and beautiful speech about Anna and the importance of reversing Rett syndrome.  It was a great night and congratulations again to RSRT and all the families and volunteers who organized it.

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