In October of last year, we attended the Rett Syndrome Research Trust Gala Benefit in New York City. We met several great Rett families that night including Manny and Stefanie Gutierrez whose two and a half year-old daughter Anna has Rett Syndrome.
Manny is a cameraman for the ABC talk show “The View” and he and his family will be profiled and interviewed this coming Friday morning (Jan. 28) on the show. The program will air at 11:00 AM EST and 10:00 AM CST/Pacific and a segment focuses on their family’s journey with Rett syndrome. They are joined on the program by Monica Coenraads, Executive Director of the Rett Syndrome Research Trust.
Despite being one of the few neurological disorders with a known genetic cause and one of the fewer that has been reversed in a mouse model, Rett syndrome gets very little media attention. Many thanks to Manny, Stefanie, Gabriel and Anna for working so hard to draw much-needed attention to the disorder and the exciting science behind reversing it.
For more information about the taping and some great behind-the-scenes snapshots, visit Stefanie’s superb blog at “This Stefanie Matters” at this link: http://thisstefaniematters.blogspot.com/
|Manny, Stefanie and Anna on the set|
|Gabriel, Stefanie, Anna and Manny|