Rett Citron before they're packed in individual boxes. |
The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders.
Thursday, November 29, 2012
Saturday, November 17, 2012
2012 Ornaments Released!
We appreciate so many people being
so supportive of the new ornaments and our campaign. The Kate Foundation website is now
updated and active to receive new orders for the 2012 ornaments. Thank
you again!
The link is here: http://www.katefoundation.org/buy_2012_ornaments.html
The link is here: http://www.katefoundation.org/buy_2012_ornaments.html
Friday, November 16, 2012
Thursday, November 15, 2012
Wednesday, November 14, 2012
Here We Go
We had it all planned out. This year, we’d order inventory early. This year, all of the planets would align and
ornament ordering, distribution and fulfillment would be seamlessly
orchestrated with a savvy 2012 marketing effort. The wondrous hum of ornament packages moving
along the conveyor belt and out to eager supporters would fill the air.
Then we got hit by a hurricane. Again.
Shortly before our 2011 Gala, we’d been hit by Hurricane Irene. No power, no cell phones and lots of peanut
butter and jelly sandwiches. During this
year’s storm, we spent some quality time at a Holiday Inn and were displaced a
few additional days from our house to resolve some damage to our property. Just as contractors were about to start working
on our house, we were delayed again by about a foot of snow. It’s become the Land of the Lost Three Weeks. Look, a Sleestack.
We’re not complaining (too much), but a hurricane will put
a wrench in your glass ornament plans every time. So
here we are, almost fully recovered, ready and rearing to go with the new
ornament introductions.
We’ll introduce each of the four new ornaments over the
next four days, one a day, and by this weekend the website interface will be
active and ready to receive orders for the 2012 ornaments. We will begin shipping the new ornament orders
beginning Nov. 26, 2012.
Thanks to everyone who has been asking about the new
designs and we appreciate all of your support of the Kate Foundation and Rett
syndrome research.
Friday, November 9, 2012
RSRT NYC
Congratulations to Rachel and Jason Rothschild and so many
other tri-state area Rett families for spearheading the Rett Syndrome Research
Trust NYC event last night. Despite the
last few challenging weeks of hurricanes, snowstorms and power loss in the region,
hundreds of people attended. It was held
at a magnificent venue, the Broad Street Ballroom in the heart of Manhattan’s
Wall Street district. Our friend Stefanie
Gutierrez, mother of four-year-old Anna who passed away in September from
complications due to Rett syndrome, gave a brave and beautiful speech about Anna
and the importance of reversing Rett syndrome.
It was a great night and congratulations again to RSRT and all the families
and volunteers who organized it.
Tuesday, November 6, 2012
Vote for the Donut
Kate came with me early this morning to the polling place
and was all smiles. We went to the bakery
afterward and she cast her own enthusiastic vote for a honey-glazed donut. The term limit for that poor donut was about 90
seconds.
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