Plus or Minus

Easter Sunday was a horrible Rett syndrome day and it trickled into some surrounding days. Kate hadn’t slept well that Saturday night and she seemed overwhelmed by the activity surrounding our Easter plans. Her breathing was poor, she barely ate anything and she spent much of the day being upset.

She’s been better this week. Her school has since sent home this snapshot, taken the week before Easter, showing her at ease and enjoying Egg Hunt festivities at school.

Celebrating holidays and important events on their actual calendar days can have an elusive success rate with Rett syndrome. Plus or minus a few days, we’ve learned, really opens up the possibilities. The picture was not taken on Easter, but it was taken on Kate’s Easter.