The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising research funding and awareness of Rett Syndrome and other MECP2-related disorders.
Tuesday, November 29, 2011
Sleeping soundly for girls with Rett syndrome can be elusive. Talk to any Rett family and many will tell you sleep quality comes in waves. You can have a good night, a good week, a good month even and then it can all far apart on you. Last month, Kate woke up at 3:15 am every night for a week. It wreaks havoc on her days and ours. It’s been better lately, but it leaves you wondering if tonight is the night the train comes off the slumber tracks.
When I ran across this 2-minute 43-second film, I couldn’t help but think of Kate sleeping. On those nights when her body is quiet and her brain free from the crackle of Rett syndrome, where does her imagination take her?