Sleep

Sleeping soundly for girls with Rett syndrome can be elusive. Talk to any Rett family and many will tell you sleep quality comes in waves. You can have a good night, a good week, a good month even and then it can all far apart on you. Last month, Kate woke up at 3:15 am every night for a week. It wreaks havoc on her days and ours. It’s been better lately, but it leaves you wondering if tonight is the night the train comes off the slumber tracks.

When I ran across this 2-minute 43-second film, I couldn’t help but think of Kate sleeping. On those nights when her body is quiet and her brain free from the crackle of Rett syndrome, where does her imagination take her?